geneticspolicy.nccrcg.orgGenetics Policy Hub – Your Hub for Genetics Policy in the US

Policy Areas Proposed Legislation/Regulation Medicaid Coverage GPH Webinar Series General Resources Medical Necessity Webinar Series Helpful Resources Newsletter Events Select Page Your Hub for the Latest Genetics Policy Information and Resources The National Coordinating Center for the Regional Genetics Networks (NCC) is pleased to develop and share resources related to genetics policy across the U.S. Within the hub, you can find the latest legislation and regulation at the state and federal level, latest information on Medicaid coverage policy, information about specific policy topics and related to policy statements from national organizations, and much more! Search for: Interested in a general genetics policy topic such as whole exome sequencing or a policy related to a specific condition? Use the search bar above to find information related to proposed legislation/regulation, Medicaid coverage policy, policy statements, events, and general resources. Our Resources Genetics Policy Areas Interested in exploring how policy affects genetics patients and providers? In the Policy Area of our website, we provide a brief overview of why a specific topic (ex. newborn screening) is important to the delivery of genetics care, how policy affects the topic area, and share position statements from national organizations on the policy area. Learn More Here Proposed Legislation/Regulation Did you know that almost daily there is a piece of legislation or regulation introduced in the United States related to genetics? Policies range from coverage of specific genetic tests or services to supporting educational programs about genetic conditions. Explore what your state is currently considering by visiting our interactive map. Discover It Here Medicaid Coverage of Genetic Services Do you want to know what your state’s Medicaid program covers related to genetic services? Updated yearly, our Medicaid database includes general coverage criteria, coverage of specific genetic tests, and coverage of specific services, such as medical foods. The database collects publicly available information from each state Medicaid program. Find Out More Here Latest Genetics Policy Events Many organizations, including NCC, hold events that relate to genetics policy. Find the next webinar, meeting, social media event, or more by checking out our calendar of activities. Find Events Legislative, Insurance, and Finance Tracking Newsletter Would you prefer to receive updates about genetics policy to your inbox? NCC publishes the Legislative, Insurance, and Finance Tracking (LIFT) Newsletter tri-annually with the latest updates on federal legislation, as well as policy resources developed by NCC and other organizations that are helpful to the genetics community. Explore The Issues Newsletter Signup NCC, the organization that publishes the Genetics Policy Hub, publishes a tri-annual newsletter that provides the latest updates on federal legislation, as well as genetics policy resources developed by us and our national partners. Subscribe today to receive the latest issue in your inbox. Email Address * * First Name Last Name Subscribe About Privacy Policy ADA Policy This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement #UH9MC30770 from 6/2020-5/2024 for $800,000 per award year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government. Twitter Website By ProjectMiso Please ensure Javascript is enabled for purposes of website...